Since 1983 Hemophilia Federation (India) is the only national umbrella organization in India, working for the welfare of Persons and Children with Hemophilia (P & CwH). We are based in New Delhi with a network of 76 chapters across the country and has identified and registered 16809 patients so far. Our aim is to reach out to persons with hemophilia and to provide total quality care, education, stability and respectability through economic rehabilitation programs. We also work on research and prevention of hemophilia through Continuous Medical Education (CME) programs with the medical fraternity and also lobby with the Government and other organizations to include it in under the National Health Program and other welfare schemes. HFI is a national member Organization in the World Federation of Hemophilia based in Canada. We also work in close collaboration with World Health Organization (WHO) and National Aids Control Organization (NACO) In spite of our efforts, we still need to reach out to more than 80% of the hemophilics of our country, and limited resources are a big challenge for us.
Hemophilia is a genetically transmitted, life long life life threatening bleeding disorder. In persons & children with hemophilia out of the XIII clotting factors which form the blood clot factor VIII or IX are either deficient or totally missing, there is one more category that is deficiency of factor XI which is very rare, the blood therefore doesn’t clot & the bleeding does not stop. This can lead to disability & possible death for the affected person especially children when left untreated. Hemophilia gene is transferred from the mother to the male child, females are the carriers & males are the sufferers. Even though genetic in nature, almost 30% cases are of fresh mutations. About 1, 00,000 estimated people in India are suffering from Hemophilia, out of which about 56% are below 20 yrs. of age. Management of hemophilia requires continuous supply of blood clotting products like Anti- Hemophilic Factor (AHF), which is not produced in India and hence very expensive & out of reach of the BPL and poor patients registered with us so far. These persons / children are also at high risk of life threatening infections like HIV/AIDS and Hepatitis, which further reduces their life expectancy. For more information please visit www.hemophilia.in
Children, Education, Elderly, Health, Women
List of items accepted as donations:
Anti Hemophilic Factor (Medicine for Hemophilia) ,Computers ,Printers ,Laptops and other office equipments ,Office & computer Stationery Items ,Packing Material ,Day to Day Groceries for poor hemophilic families
Preferred time of drop-off:
No drop off
Hemophilia Federation (India) ,A-128, Mohammedpur (Behind Bhikaji Cama Place) ,New Delhi – 110066
•Identified and supported approx. 16,809 PWH across the country.
•A large network of 76 chapters in India.
•Only Indian NGO that has been granted a license to import life saving medicine like Anti Hemophilia Factor (AHF).
•Educated more than 12,000 people of the medical fraternity on hemophilia care and management through Continuous Medical Education (CME).
•Two International Hemophilia Training Centers established for the hemophilia care training requirements for the Asian region.
•Special Needs Cell for HIV positive PWH that provides subsidized treatment.
•Supported 50 PWH on economic rehabilitation esp. with formation of women Self Help Group (SHG).
•Celebrated 30 successful years in the service of Persons & Children with Hemophilia on Nov 24th 2008 attended by Hon’ble Health Minister Anbumani Ramadoss as the Chief Guest.
•Acquired 35 AC certification of the income tax act, 1961 certification which entitles all our donors & supporters to 100 % tax exemption